지원사업
학술연구/단체지원/교육 등 연구자 활동을 지속하도록 DBpia가 지원하고 있어요.
커뮤니티
연구자들이 자신의 연구와 전문성을 널리 알리고, 새로운 협력의 기회를 만들 수 있는 네트워킹 공간이에요.
논문 기본 정보
- 자료유형
- 학술저널
- 저자정보
- 발행연도
- 2011.1
- 수록면
- 58 - 67 (10page)
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초록· 키워드
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Purpose: This study was done to explore the meaning of joys and sorrows in mothers of children with Mucopolysaccharidosis (MPS). Methods: The participants were 9 mothers who each had a child with MPS. Data were gathered using in-depth interviews. The interviews were recorded and transcribed verbatim. Data were analyzed using Colaizzi method. Results: The significant results from analyzing the interviews can be grouped into 12 concept descriptions, and 5 theme clusters. The essential theme clusters for the experience of the mothers were 'hopelessness about this rare disease', 'guilt because of the disease being hereditary, 'endless courses of treatment', 'wounds in the relationship', and 'relative composure of mind'. Conclusion: The finding of this study offer profound information on joys and sorrows experienced by mothers of children with MPS and provide basic data for developing nursing intervention strategies for the mothers of children with rare diseases.
목차
등록된 정보가 없습니다.
참고문헌 (16)
참고문헌 신청
Armstrong-Dailey, A. / 2004 / Hospice care for children / Koonja
Chang, S. H. / 2005 / Mucopolysaccharidosis and mucolipidosis / Hanyang Medical Reviews 25(3):27~36
조결자 / 2008 / 혈우아동 어머니의 양육태도 영향요인 / Child Health Nursing Research 14(2):195~202
조경미 / 2007 / 중증 선천성 심질환 아동 어머니의 양육경험 / Child Health Nursing Research 13(4):454~466
Colaizzi, P. F. / 1978 / Psychological research as the phenomenological views, in Existential phenomenological alternative for psychology / Oxford University Press :48~71
Chang, S. H. / 2005 / Mucopolysaccharidosis and mucolipidosis / Hanyang Medical Reviews 25(3):27~36
조결자 / 2008 / 혈우아동 어머니의 양육태도 영향요인 / Child Health Nursing Research 14(2):195~202
조경미 / 2007 / 중증 선천성 심질환 아동 어머니의 양육경험 / Child Health Nursing Research 13(4):454~466
Colaizzi, P. F. / 1978 / Psychological research as the phenomenological views, in Existential phenomenological alternative for psychology / Oxford University Press :48~71
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